DiSEPA (Disability, Social Environment, and Premature Aging) Study 

Introducing DiSEPA  

The DiSEPA study aims to understand the social environment and health of people with disabilities and their family members in South Korea. 

Adopting a multilevel life course framework, we will explore how the social environment (e.g., discrimination, social support, hostile policies) shapes their lives and leads to poor health outcomes. Our plan is to do a cohort study over the next 20 years of three different populations: people with physical disabilities, people with developmental disabilities, and their parents. For this purpose, DiSEPA will employ a comprehensive approach: (1) qualitative research through in-depth interviews, (2) epidemiological research using survey and administrative data, (3) biomarker analysis including telomere length and DNA methylation. 

This research is supported by the Brian Impact Foundation. 

Researchers in DiSEPA

Seung-Sup Kim, MD, MPH, ScD

Seung-Sup Kim is a principal investigator of the DiSEPA study. 

He is an epidemiologist with a medical background. He received his MD from Yonsei University, MPH from Seoul National University, and ScD from the Harvard School of Public Health. He has worked at the Milken Institute School of Public Health and Korea University. Since 2022, he has been working as an associate professor at the Department of Environmental Health Sciences, Graduate School of Public Health, Seoul National University. His research focused on social determinants of health among the socially disadvantaged population, including people with disabilities, immigrants, LGBT people, and precarious workers. He has published in peer-reviewed journals including Lancet, Scandinavian Journal of Work, Environment & Health, American Journal of Industrial Medicine, International Archives of Occupational and Environmental Health, Transgender Health, LGBT Health, Social Science & Medicine. 


E-mail: kim.seungsup@snu.ac.kr

Ja Young Kim, PhD

Ja Young Kim, a senior researcher of the DiSEPA study, has an impressive academic background. She obtained her Bachelor's and Master's degrees in life sciences from Sogang University, a Master's degree in Epidemiology from the Harvard School of Public Health and a Ph.D. in health administration from Korea University. During her doctoral studies, Ja Young Kim focused on various projects related to the work environment and health of medical interns and residents, firefighters, and call center workers in South Korea. After completing her Ph.D., she worked as a research fellow at health policy institutions in Seoul and Gyeonggi-do from 2017 to 2022.From the inception of the DiSEPA project, Ja Young Kim has been an integral part of the team. Her responsibilities include conducting epidemiological research and investigating biomarkers among people with disabilities and their family members.

E-mail: jykim03@snu.ac.kr

Yeongmin Mun, PhD

Yeongmin Mun, researcher, is in the DiSEPA research team. She received her BS in Chemistry from Seoul National University, and MSW and PhD in Social Welfare from the same institution.  She has several disabilities and health conditions, and uses a wheelchair. Through her experiences, she has gained a deep understanding that the health and labor issues faced by individuals with disabilities stem from social barriers encountered throughout their lives. She has published over 20 articles in various domestic and international peer-reviewed journals including Disability & Society and International Journal of Public Health. These publications highlight important topics such as disability health, labor market participation of people with disabilities, and disability studies. She had co-translated the autobiography of American disability activist Judith Heumann, titled "Being Heumann: An Unrepentant Memoir of a Disability Rights," into Korean. Currently, she is engaged in research on mobility rights and the health of individuals with physical disabilities as part of the DiSEPA study.

E-mail: saojung1@snu.ac.kr

Hanui Choi, MA

After obtaining a Bachelor of Arts degree in International Relations, I pursued further studies at the Erasmus Mundus Master in Global Studies programme. Following my studies, I joined Amnesty International Korea as a campaigns coordinator, working on human rights issues related to arms control, urgent actions in North Africa and the Middle East, and conscientious objection in South Korea. During my stay at PEACEMOMO, a peace education organisation, where my primary areas of focus were peace, security, disarmament, and peace education. Engaging in these activities provided me with a good understanding of how the individual body and society are interconnected and influenced at every level, from the personal to the social and structural spheres. Around that period, I encountered several illness, which led me into exploring disease, disability and the relationship between the body and public. I am excited to join the Ph.D. programme in the Department of Environmental Health Sciences at Seoul National University since the fall semester of 2023. I believe it presents a precious opportunity to connecting my experience and social activities with the academic field.

E-mail: hanui.wind362@gmail.com

Minjung Jung, BS

I’m currently pursuing a Master's degree in Dept. of Environmental Health, after completing my Bachelor's degree in Biology. Throughout my research career, I have been involved in various fields. It started with my experience as a student researcher at the Ecological Conservation Laboratory at the National Institute of Ecology, followed by my work as a researcher at the Plant Cell Biology Lab at the Dept. of Biological Science at Seoul National University. These cell biology-based experiences have allowed me to gain practical knowledge in a wide range of biology research areas. In addition, I have actively involved in the field of disability, specifically focusing on working with youth with disabilities at the Seoul Junggu Youth Center. I also worked as a calligraphy therapy instructor for elderly with disabilities individuals at the Yongan Warm House. I have also received recognition as a science communicator. I was awarded the Grand Prize(Ministry of Science and ICT Award) at the Science Communication Contest, FameLab Korea 2019. Furthermore, I was selected as one of the top 11 finalists representing Korea at the FameLab International 2019 competition. My research primarily focuses on the social environment and premature aging among people with disabilities, as well as the field of Social-Epigenetics. I am particularly interested in the biological changes resulting from social environments. With a strong scientific background and practical experience, I aspire to gain a thorough, scientific understanding of the reality faced by people with disabilities in Korea. I hope our study will shed light on their experiences and make a meaningful impact.

E-mail: mj.jung@snu.ac.kr

Hee Won Michelle Kim, BS

I am currently enrolled in the Master’s in Public Health (MPH) program at the Seoul National University Graduate School of Public Health. I received my bachelor’s degree in Biology of Global Health from Georgetown University in Washington, D.C., United States. During my undergraduate studies, I served as an undergraduate research assistant at the Huang Lab, investigating oligodendrocytes and glial cells and their potential therapeutic implications in the remyelination process of neurodegenerative diseases, particularly Multiple Sclerosis (MS). My senior thesis project delved into the role of a specific gene and its modulation of inflammatory responses by classically activated macrophages (CAM). Through these experiences, I have developed essential laboratory skills and gained a deeper understanding of cell biology. Moreover, a year-long internship with the United States Health and Human Services (US HHS-ASPR) has further expanded my horizons and perspectives in the field of public health. At the DiSEPA research team, I aim to integrate my passion for biology and public health, focusing on epidemiological research that incorporates biomarkers related to premature aging among people with disabilities and their family members.

E-mail: hmk0507@snu.ac.kr 

Eunji Paeng, BA

I am currently pursuing a master's degree in public health at Seoul National University's Graduate School of Public Health. My academic background includes a Bachelor's degree in Political Science and International Relations with a major in Political Science, and minors in Biological Sciences and Statistics.

During my undergraduate studies, I investigated the impact of infectious diseases on the health inequality of individuals with disabilities, focusing on H1N1 Influenza, MERS, and COVID-19. Through media analysis, interviews, and critical examination of government responses, I explored the societal discourse on health inequality. My bachelor’s thesis examined the correlation between IMF bailouts and tuberculosis incidence, highlighting the mediating effect of political decision-making on government finances and suggesting links to cuts in social security and health spending based on political patronage. Beyond academia, I contributed to FREEMED, a health-focused NGO, where I served as the team leader for the Health Statistics Team. I managed statistical data, guided the team in creating result indices, and played a crucial role in overseeing the team's operations. Volunteering at the free medical center and conducting health education classes for the elderly, I further enhanced my practical experience in health-related fields.

Leveraging my diverse academic background and hands-on experience, I am committed to addressing health challenges faced by individuals with disabilities and their families. I aspire to contribute meaningfully to resolving these issues through my interdisciplinary knowledge and research skills.

E-mail: hmk0507@snu.ac.kr